Patient Support Groups

At the Australasian College of Dermatologists, we understand that skin conditions are not just skin deep but can have an emotional, physical and mental impact. Patient Support Groups in Australia provide practical and emotional support to help people, their carers and their families cope up with their chronic skin conditions.

Australian Organisations

The Albinism Fellowship of Australia (AFA) is a national, non-profit organisation established in 2005. The fellowship is run by volunteers who all have been personally touched by albinism in some way. The AFA’s key purpose is to provide support, education and fellowship to those with albinism, parents of children with albinism as well as their families and friends.

The All About Acne team, who are the authors of this site, are a group of health and medical experts from across Australia who have an interest in the management of acne. They include several leading dermatologists, a GP and a cosmetic medical practitioner.

These people donate their time and expertise in order to provide the most up-to-date, practical and relevant information on acne-related matters.

Allergy & Anaphylaxis Australia is a charitable, not-for-profit organisation established in 1993. As the trusted charity for allergy support, our vision is improved quality of life for all Australians living with allergic disease. With a Medical Advisory Board to consult for advice, we provide evidence-based information, resources and services to support children and adults living with allergic disease.

Australia Alopecia Areata Foundation Inc. (AAAF) was founded in 2010 with the purpose of improving the lives of people living with Alopecia Areata and their families. We have three missions; to provide support to those with all forms of Alopecia Areata, and their families; to inform the public and create awareness of Alopecia Areata; and to support research into a cure or acceptable treatment for Alopecia Areata.

The Australian Gorlin Syndrome Mutual Support Group is composed of people with different professions and life experiences but we have this genetic condition in common. Our aim is to share our stories and to keep up to date with the latest research and treatments being offered.

Coeliac Australia is a national not-for-profit organisation supporting people with coeliac disease and those medically diagnosed as requiring a gluten free diet. Coeliac Australia provides funding for research and information and resources to its members, the community, health professionals and the hospitality industry.

DEBRA Australia Ltd. is a volunteer based organisation that assists in improving the lives of children and adults living with EB, the debilitating and sometimes fatal condition, by providing necessary support services, medical supplies, aids and equipment, support services, assistance with transition to independent living and research focusing on different aspects of EB.

The Eczema Association of Australasia Inc, a national non-profit organisation, supports and educates eczema sufferers and carers, along with the wider community, in all aspects of eczema and its impact with the aim of helping them manage their skin condition.

We understand the challenges of dealing with chronic eczema, also known as atopic dermatitis. We also understand the challenges of living with other atopic or allergic conditions. Therefore, Eczema Support Australia aims to provide real and practical support to Australians who are significantly impacted by these conditions. Our membership is free!

Hidradenitis Suppurativa Australia is a dedicated charity focused solely on Hidradenitis Suppurativa (HS). We run an online support community for those living with HS, liaise with researchers on the impacts of HS, and hold events including HS Awareness Week in June each year. We work to promote awareness, advocacy and understanding, as well as educate the community and medical professionals about HS with the aim of earlier diagnosis and better treatment.

Having the highest incidence of skin cancer in the world, the Melanoma and Skin Cancer Advocacy Network provides a new, innovative approach to tackle Australia’s national cancer. MSCAN’s mission is to listen, represent and inform the melanoma and skin cancer community on research and innovation, advocacy and influencing policy and resources and information.

Melanoma Patients Australia (MPA) is an independent, not for profit organisation dedicated to supporting and representing those affected by melanoma. We provide many services to assist people on their journey with melanoma, including a Melanoma Telehealth Nurse Service, education, peer-to-peer connections and support groups both online, over the phone and face-to-face. Our vision is to reduce the impact of melanoma on all Australians.

Nevus Support Australia is Australia’s first not for profit support group and charity, providing information and support to individuals and families affected by (CMN) Congenital Melanocytic Nevus. We support research into pigmented skin conditions and associated conditions including melanoma, neurocutaneous melanocytosis (NCM) and hydrocephaly.

Psoriasis Australia strives to assist people with psoriasis, or those wanting to know about psoriasis, by providing beneficial information and support enabling educated decisions to be made on treatment choices and lifestyle changes.

Scleroderma Australia aims to promote scleroderma awareness on a national basis, disseminate information about scleroderma, fund and coordinate scleroderma research and advocate for improved and ongoing support for scleroderma patients

The Vitiligo Association of Australia (VAA) is a not-for-profit association founded in September 2010 for patient support, public education and the promotion of research into vitiligo within Australia.

International Organisations

The Hidradenitis Suppurativa Foundation, Inc. (HSF) is a nonprofit public benefit corporation, dedicated to improving research, education, and the quality of life and care for individuals and families affected by Hidradenitis Suppurativa (HS).

The National Psoriasis Foundation (NPF) is a non-profit organization with a mission to drive efforts to cure psoriatic disease and improve the lives of those affected.

The Vascular Birthmark Foundation (VBF) is an international charitable organisation that networks those affected by a vascular birthmark, anomaly, tumor or syndrome to the appropriate medical professionals for evaluation and treatment. VBF also educates physicians and affected families regarding treatment options, supports relevant research, mobilises medical missions, and empowers those living with vascular birthmarks.