New guidelines in EB

New guidelines in EB

DEBRA International is undertaking a long-term initiative to develop clinical practice guidelines for Epidermolysis Bullosa (EB). These guidelines will help to improve the clinical and social care of EB patients across the globe.

DEBRA International would like to ask for your collaboration. By completing these surveys, you will directly affect the questions and issues addressed in both guidelines.

Click here to complete the survey on sexuality in EB. For questions please contact Alex R. King, Occupational Therapist, Co-Lead of the guideline.

Click here to complete the survey on pregnancy and childbirth in EB. For questions please contact Kattya Mayre-Chilton, Clinical Practice Guideline Coordinator, DEBRA International.

Thank you in advance for your help and dedication to EB patients.